e-mail me

Please Note:
  This area of the website is only for showing non-personal, identity-protected images of rashes, or other signs and symptoms of NOMID/CINCA, Muckle-Wells and Familial Cold Autoinflammatory Syndromes. If you would like to share a photo, please send it to site_manager@nomidalliance.net as we would love to have more photos showing the varying degrees of inflammation that CAPS can present in the body. Photos of the eye, joints, etc would be wonderful to add to this page.

NOMID Rash NOMID Rash

This is what a NOMID rash can look like, especially during a flare up. Most people with NOMID that are not being treated with Anakinra (Kineret), or other effective treatments, have a rash almost always present, covering most of the body, and face. The rash can vary in size, number of eruptions, and intensity of redness. Flare ups of inflammation can be frequent, sometimes almost every other day. Along with increased rash, there is a usually a fever, along with any or all of the following: Extreme fatigue, headaches, joint and body pains, weakness and/or loss of functions, vision changes, conjunctivitis, vomiting, nausea, extreme thirst and irritability and increased or irregular lab values for inflammation. Skin biopsies often reveal an increased number of neutrophils near the eccrine coils in the skin.

Other sources of Syndrome Photos
  A wonderful organization located in France, Club Rheumatisimes et Inflammations is dedicated to increasing awareness about various rheumatic, inflammatory and periodic fever syndromes. Their site is geared for medical professionals. Some of the images are of severe cases, and may be disturbing to some people. It is helpful to see the spectrum of problems with NOMID/CINCA and what some other disorders look like, if you are seeking a diagnosis.

CAPS patient backgrounder pdf has good photos of CAPs symotoms
  http://www.prnewswire.com/mnr/novartis/38814/docs/38814-CAPS_Backgrounder.pdf



|Welcome!| |Purpose & Goals| |Syndrome Info.| |Clinical Trials| |CAPS Guidebook| |Research Findings| |Syndrome photos| |Internet Links| |Shop/Support| |CAPS Specialists| |News & Events| |Donate| |Annual Reports| |Thanks to Our Donors| |Feedback Survey| |Contact Us| |Survey| |Buy T shirts/totes|